I have an idea of what you are experiencing. My son was 6 weeks premature and had severe hyaline membrane disease. His lungs were underdeveloped and for the 1st three days was on oxygen at the highest setting. He spent 3 weeks in intensive care and 2 months in the hospital. He went home on oxygen and was 8 months old before he was weaned off. While he was in the hospital I was there everyday for 12-14 hours. He knew I was there too because the nurses commented on how his vital signs improved when I was there. My situation is not the same as yours, but I do have an idea of the trials of spending many weeks at the hospital. Our children need our love and support during difficult times such as this and I know you are providing this. And you have those needs too. I will continue to pray daily for your son and your family. Remember, God has got this.
It sounds weird to say it to people who haven't been here, but it is in many ways a blessing to be here. My son and I have never been closer and sometimes I think God has a way of thumping you on the head and telling you to look around and count your blessings... Every day is precious and not in any way guaranteed. 2nd day of hard chemo and it has been amazing. I know it's gonna get so much worse, but reading all the comments has given me a huge surge of strength and peace. Thank you for sharing your story. I am truly humbled by it and hope everyone is healthy and well in your family.
Thank you for your response. My son (who is 29) ended up with asthma and was diagnosed last year with moderate to severe COPD due to the treatment they gave him to save his life at birth. Ventilators are a two-edged sword. They saved his life but damaged his lungs. They told us he would generate new lung tissue until about 8 years old. I thought we had it behind us but I was wrong. The pulmonologist told my son he should be able to live a normal life span but he has to be careful. Right now the covid scares me but I am trying to leave it in God’s hands and not pick it back up again. I am glad your son is at St. Judes. That is one amazing place and your son is in the best place possible. Their success rate is very high. I’m praying specifically for all the doctors and medical personnel and am also praying for you. I’m sure you have the support you need. It’s so tough being a caregiver in situations like these. When my son was in the hospital it seemed like they were coming to me almost every other day telling me this or that might be wrong with my son. I had to do it alone because my husband had to work and my family and his live 3 hours away. You take care of yourself so you can be there for your son. Sending you love as a Christian and please keep us updated. You might want to reply to me specifically in case I miss your post
I have an idea of what you are experiencing. My son was 6 weeks premature and had severe hyaline membrane disease. His lungs were underdeveloped and for the 1st three days was on oxygen at the highest setting. He spent 3 weeks in intensive care and 2 months in the hospital. He went home on oxygen and was 8 months old before he was weaned off. While he was in the hospital I was there everyday for 12-14 hours. He knew I was there too because the nurses commented on how his vital signs improved when I was there. My situation is not the same as yours, but I do have an idea of the trials of spending many weeks at the hospital. Our children need our love and support during difficult times such as this and I know you are providing this. And you have those needs too. I will continue to pray daily for your son and your family. Remember, God has got this.
It sounds weird to say it to people who haven't been here, but it is in many ways a blessing to be here. My son and I have never been closer and sometimes I think God has a way of thumping you on the head and telling you to look around and count your blessings... Every day is precious and not in any way guaranteed. 2nd day of hard chemo and it has been amazing. I know it's gonna get so much worse, but reading all the comments has given me a huge surge of strength and peace. Thank you for sharing your story. I am truly humbled by it and hope everyone is healthy and well in your family.
Thank you for your response. My son (who is 29) ended up with asthma and was diagnosed last year with moderate to severe COPD due to the treatment they gave him to save his life at birth. Ventilators are a two-edged sword. They saved his life but damaged his lungs. They told us he would generate new lung tissue until about 8 years old. I thought we had it behind us but I was wrong. The pulmonologist told my son he should be able to live a normal life span but he has to be careful. Right now the covid scares me but I am trying to leave it in God’s hands and not pick it back up again. I am glad your son is at St. Judes. That is one amazing place and your son is in the best place possible. Their success rate is very high. I’m praying specifically for all the doctors and medical personnel and am also praying for you. I’m sure you have the support you need. It’s so tough being a caregiver in situations like these. When my son was in the hospital it seemed like they were coming to me almost every other day telling me this or that might be wrong with my son. I had to do it alone because my husband had to work and my family and his live 3 hours away. You take care of yourself so you can be there for your son. Sending you love as a Christian and please keep us updated. You might want to reply to me specifically in case I miss your post
Thank you. It is hard, but everyone here has been so kind.