Thank you. It is hard, but everyone here has been so kind.
It sounds weird to say it to people who haven't been here, but it is in many ways a blessing to be here. My son and I have never been closer and sometimes I think God has a way of thumping you on the head and telling you to look around and count your blessings... Every day is precious and not in any way guaranteed. 2nd day of hard chemo and it has been amazing. I know it's gonna get so much worse, but reading all the comments has given me a huge surge of strength and peace. Thank you for sharing your story. I am truly humbled by it and hope everyone is healthy and well in your family.
You speak the truth. The first night I got here I had a small tote and my boy had one pair of underwear a pair of shorts socks and a hospital gown from our hospital in Springfield Mo. I must have looked like a refugee. A kind nurse, a big black guy with a heart of gold took me for a quick walk after jackson went to sleep. He reminded me that God was driving and to let go the wheel. It was the speech I needed to hear exactly when I needs to hear it. Those first days were hard. I would wake up at 4 get his lab results and then walk around the leukemia ward (which I have since learned is exactly .09 of a mile) and bawl into my mask.
Thank you. Hug your boy till his eyes almost pop out. Never take it for granted. Hope you never have to make a trip like this or have to make decisions like we have been. Exposed to this week. We are in a wonderful place for treating cancer but I would rather be almost anywhere else.
I can vouch for the fact that your donation goes to a good cause. They have treated us wonderfully. The only problem is covid has us on a virtual lockdown.... It's hard to keep a 14 yr old entertained. We have become so much closer though.
- He is a boy scout and plays french horn in band. I have three kids and he has always been the polite one. When. I take the family out to eat he always tells me thank you..... He is just a sweet kid.
Sure. It's jackson. He had a bone marrow biopsy this morning and is sleeping peacefully next to me. The nasty chemo is going in now.... Reading every one's responses is a definite pick me up. Wish I could give them all a hug.
Writing that down. Where can I get it?
Thank you. It is so hard to find things he can tolerate so I will definitely look into it. At this point I would milk an angry hippo if I thought I could get him to drink it.
I think you are right! I have so little control here. I am used to being the boss but here all I can control is my attitude... I can influence his and
Have no complaints. He is in extraordinary excellent care here. St jude's is amazing. Just hard to see your kid in pain and not be able to do anything about it it.
Where do I get it. ?
Where did you guys get treatment? It’s nice to hear from those that have made it through the gauntlet!
Thank you. Believe it or not we feel every prayer here. I love all my kids, but this one is my sole focus for the next few months. Cancer sucks,
It was not easy. But I gave them a look that said it would be easier to say yes to the crazy dad.... they also know I am a doting parent wh will do anything to keep my guy in good spirits. COVID makes my job 1000 times harder. Mom can’t be here while I am. It totally sucks. My wife and I are a total team, she is the nice one while I am the one that makes him eat and walk.... we also have two other kids that are back at home with a sister that drove from Virginia to look after them. We are very blessed!
Thank you! Fresh graded ginger juice eh? Any sources for that’s in Memphis?
Thank you. Tomorrow is the beginning of our first round of hard chemo.... I can’t sleep worrying about it.
That is actually a pic of Trumps son. I am a huge fan of Trump. (Obviously... we pedes all are) had no idea how much the family has given to St. Jude in Memphis. We were literally getting treatment in their wing! But according to the mainstream media they only care about themselves....
I can't wait to tell him. That is gonna make his day! Thank you!
That means a ton to us. Thank you!
Not sure what that is.
It's true... Momma named me funny!
The other thing I am sad to admit I was oblivious to is donating platelets and blood. It literally can save a life in 15 minutes...
Unfortunately we are leukemia aml. We will know a lot more in 3 weeks.
Not surprised