I can vouch for the fact that your donation goes to a good cause. They have treated us wonderfully. The only problem is covid has us on a virtual lockdown.... It's hard to keep a 14 yr old entertained. We have become so much closer though.
- He is a boy scout and plays french horn in band. I have three kids and he has always been the polite one. When. I take the family out to eat he always tells me thank you..... He is just a sweet kid.
Sure. It's jackson. He had a bone marrow biopsy this morning and is sleeping peacefully next to me. The nasty chemo is going in now.... Reading every one's responses is a definite pick me up. Wish I could give them all a hug.
Writing that down. Where can I get it?
Thank you. It is so hard to find things he can tolerate so I will definitely look into it. At this point I would milk an angry hippo if I thought I could get him to drink it.
I think you are right! I have so little control here. I am used to being the boss but here all I can control is my attitude... I can influence his and
Have no complaints. He is in extraordinary excellent care here. St jude's is amazing. Just hard to see your kid in pain and not be able to do anything about it it.
Where do I get it. ?
Where did you guys get treatment? It’s nice to hear from those that have made it through the gauntlet!
Thank you. Believe it or not we feel every prayer here. I love all my kids, but this one is my sole focus for the next few months. Cancer sucks,
It was not easy. But I gave them a look that said it would be easier to say yes to the crazy dad.... they also know I am a doting parent wh will do anything to keep my guy in good spirits. COVID makes my job 1000 times harder. Mom can’t be here while I am. It totally sucks. My wife and I are a total team, she is the nice one while I am the one that makes him eat and walk.... we also have two other kids that are back at home with a sister that drove from Virginia to look after them. We are very blessed!
Thank you! Fresh graded ginger juice eh? Any sources for that’s in Memphis?
Thank you. Tomorrow is the beginning of our first round of hard chemo.... I can’t sleep worrying about it.
That is actually a pic of Trumps son. I am a huge fan of Trump. (Obviously... we pedes all are) had no idea how much the family has given to St. Jude in Memphis. We were literally getting treatment in their wing! But according to the mainstream media they only care about themselves....
I can't wait to tell him. That is gonna make his day! Thank you!
That means a ton to us. Thank you!
Not sure what that is.
It's true... Momma named me funny!
The other thing I am sad to admit I was oblivious to is donating platelets and blood. It literally can save a life in 15 minutes...
Unfortunately we are leukemia aml. We will know a lot more in 3 weeks.
Here at st jude's every thing is payed for. The first night here I got Jackson settled (it was rough because he was having severe pain in his legs ) so at three in the morning I realized I hadn't eaten all day... Went down to the cafeteria to get a diet mountain dew and a bag of chips... Tried to pay and the lady said "sir your money is no good here." I assured her I could take care of this she just gently shook her head and pushed the stuff back to me. I lost my stuff (not the last time) and bawled. It is so humbling having the support here. The staff is absolutely amazing. I sleep right next to my son and the nurses are in the room offer before I can stand up when alarms go off.
If you would like to do something a card or note would be awesome. Our address is Jackson Hemphill St. Jude Children's Research Hospital 262 Danny Thomas Place Memphis Tn 38105- 3678
His chemo started yesterday so he is gonna start getting very sick and tired on or about Monday of next week. There are a million things to do here normally, but covid restrictions (and normal fears of infections) keeps us isolated. Sorry for the long post. It is 730 here and I have been up since four reading everything I can about this disease and getting his blood work results from last night ( it was a good night he got plenty of pain free rest) I try to have a friend or family member call and wake him up at 810am and then do every thing on my power to feed him high calorie foods ( it's and his attitude are all I have control over) sorry if this is way to much info. It has helped me stay busy for a bit. Thank you.
We are truly blessed to be here. My money is no good. Your donations take care of everything. Iiterally have noting to worry about but making sure my son eats as much as he can (calories calories calories) and that he stays in high spirits. It is very humbling. I actually started crying while writing this. I asked the flight nurse what her best guess was on the cost of the flight and she estimated 30k it saved him a 5 hour ambulance ride and days of delay beginning the process. Thank you for your donation and I can assure you the kids that are here benefitted greatly from it.
We are very lucky. And very blessed. The folks at st jude are AMAZING. As a kid I remember going door to door collecting for st. Jude's ... It is surreal to be on the inside now.
Thank you. Hug your boy till his eyes almost pop out. Never take it for granted. Hope you never have to make a trip like this or have to make decisions like we have been. Exposed to this week. We are in a wonderful place for treating cancer but I would rather be almost anywhere else.